When we found out about our baby's diagnosis, we received a lot of love and support and we also had many people say "I don't know what to say". I thought about this and I am not sure I would have known what to say either if the situation was reversed. When I was doing internet research, I came upon a website that addressed this specific issue. The "Things NOT to say" are
not necessarily things that upset me personally, but I found it helpful for myself to be aware in case I am speaking to other new parents. (The 2 things I would add is: 1) Beware of saying "I wonder what could have caused that?" This gives speculation to the idea that there is something that the parents have done to cause or prevent the Down's Syndrome. 2)Avoid talking about all the "challenges" the parents will face. That is negative and depressing for new parents to hear. Yes, of course there will be challenges, but remember all kids have their challenges!) Ok, Here it is if you are interested:
http://www.downsyn.com/relatives.php
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